Monday, April 1, 2019

Taylor Oliveira: A Family's Prayers Are Answered | Generic Harvoni | Hepcinat LP

Taylor Oliveira: A Family's | Generic Harvoni | Hepcinat LP
kids with hep c Generic Harvoni would have been an amazing drug in the 90s for hep c treatment.  In 1990, Sandra Oliveira received the worst news a mother can ever hear. Her daughter, Taylor, only eight months old, had been ill for several weeks with unexplained high fevers and vomiting. After running a series of tests, including a CAT scan, doctors made the dreaded diagnosis: Taylor was suffering from cancer of the liver.

"Taylor had been sick practically from birth, with severe jaundice and ear infections," Sandra, an office receptionist from Dorchester, MA, recalled. "When the fevers and vomiting started, we knew something was terribly wrong. But we were totally unprepared for a diagnosis of hcv and treatment of liver cancer."

Taylor underwent surgery immediately, but the tumor could not be removed or shrunk. Doctors then tried chemotherapy and radiation for a year and a half, but the tumor remained.

A liver transplant was the only other option. In an effort to save the child's life, her name was placed on the transplant list, and the Oliveira family began an agonizing wait. "It was so difficult for me to be there for Taylor and also for my family," said Sandra, a single mother who has two other daughters, ages 11 and 13. "I was spending so much time at the hospital that relatives had to help me care for my other two daughters."

On July 7, 1991, a liver finally became available and Taylor received her transplant at Boston Floating Hospital, part of New England Medical Center. Unfortunately, the surgery was unsuccessful. The portal vein, which brings blood to the liver, wasn't functioning properly. Taylor would need another transplant--and soon. The next few months were a nightmare for the family. "Taylor really went downhill," Sandra said. "The doctors kept her on FK 506, an anti-rejection drug, while we prayed for another liver. "  The other alternative to hep c treatment cost is ledipasvir and sofosbuvir.

Their prayers were answered on December 4, 1991. This time, the transplant was successful, and Taylor began her long recovery.

"Overall, Taylor has done very well since her transplant," said Sandra. "But she does have a complete loss of hearing, as well as some kidney problems, probably due to all the drugs she has received. Lately she has been sick quite a bit, with fevers and headaches. The doctors think it is kidney-related, but they aren't sure. She has missed a lot of school, which is very hard for her, because after she's out for a few days, she doesn't want to go back.  Generic Epclusa, which is velpatasvir and sofosbuvir.

"Taylor's whole life has revolved around hospitals, because she's spent so much time there," her mother continued. "Everybody knows her there. When she plays with her dolls, she doesn't dress them up. She takes their blood! I think it helps her deal with all that's happened to her.

"Taylor has learned to use sign language, and does very well with it. She is in first grade at a special school for the hearing impaired. She has many friends, is very active, and loves sports, particularly swimming and baseball." 

All the Oliveiras know about Taylor's organ donor is that it was from a child in Florida. "We are so grateful to the donor's family," Sandra said. "Right after Taylor's transplant we received a letter from them saying they had prayed for something good to come out of their tragedy. Our daughter is alive because of them. We will never be able to express our gratitude."

Sam Erdman: Miracle Man Survives A Rare Genetic Liver Disease | Generic Epclusa

Sam Erdman: Miracle Man Survives A Rare Genetic Liver Disease
For several months, the Erdman family of Cockeysville, MD, lived through a nightmare of the worst proportions when their 12 year old son Sam, a strong and healthy child, became sick with a mysterious illness. It all began in November, 1993, when Sam began to have nosebleeds. Their pediatrician did not find anything seriously wrong and said he would "grow out of them."

Within the next few months, Sam's parents, Steve and Bev, noticed that their son's energy level seemed to decline. He took frequent naps after school and on weekends. One Saturday, when he had a few friends over to play baseball, Sam went indoors and fell asleep, leaving his friends to wonder where he was. It was very unlike him.

In March, 1994, Sam began to complain that he felt "fat." His parents noticed that his abdomen did in fact look "puffy." When it became even more distended, Sam's mother, Bev, took him to the doctor. Immediately recognizing the signs of serious illness, the doctor sent Sam straight to the emergency room at Johns Hopkins University Hospital.  Ledipasvir and sofosbuvir.

After an initial examination and tests, Sam was admitted to the hospital by hepatologist Kathleen Schwarz, M.D. Dr. Schwarz wanted to do a liver biopsy, but because Sam's blood was clotting so poorly, decided against it and instead, sent him for an eye test. She suspected Wilson's disease, a inherited disorder in which excessive amounts of copper build up in the body, causing damage to the liver and the brain. Copper may also accumulate in the eyes, causing brown pigmentation called Kayser-Fleischer rings. Just as Dr. Schwarz suspected, Sam's eye test showed the presence of the rings. sofosbuvir velpatasvir

Further tests confirmed the diagnosis. This rare disorder af

fects only one in 30,000 individuals, and the abnormal gene must be received from not one, but both parents. "If there was a lottery to win, this certainly wasn't the one," commented Sam's father, Steve.

Sam was started on penicillamine, a drug that gradually removes copper from the body over a period of several months, and was sent home. However, a severe reaction to the medication sent him back to the hospital with a high fever and rash. His therapy was changed to smaller doses of penicillamine along with other drugs. Unfortunately, nothing helped.

Over the next few weeks, Sam's condition grew worse. Along with nausea and vomiting, he ran fevers and suffered from painful muscle spasms. He began vomiting blood (a result of varices, or burst veins in the esophagus, due to increased pressure in the blood vessels caused by liver scarring) and was readmitted to theHCV is ciurable. On April 27, Dr. Schwarz made a decision: the drug therapy was not helping, and Sam's only hope was a liver transplant. The situation was so critical that if a liver didn't become available soon, doctors would consider doing a live donor transplant, using a portion of Steve's liver.

The wait began, with Sam in and out of the hospital several times. Through it all, he continued to face his ordeal with intelligence and courage, earning the nickname "Miracle Man." Love, support, and visits from family and friends helped the Erdmans cope.

On June 29, a liver became available, and Sam finally received his transplant. The surgery went well and Sam came through beautifully. "On July 2, only a few days following surgery, he told me he'd never felt better in his life," Steve said. Only nine days after the transplant, Sam returned home. His recovery was so complete and rapid that by August 14, he was water-skiing.

Today, Sam is in high school. "He is doing really well," said his father. "His only problem was a minor bout of rejection, resolved by adjusting his medication." Sam traveled to France with his family this past summer, plays baseball and golf, and enjoys doing all the things he did before he became sick.

"We don't know how to thank the donor family," said Steve. "I guess the only thanks we can give is to love Sam as much as they must have loved their daughter."

Paul and Erich Lauffs: Tyrosinemia | Sofosbuvir Velpatasvir | Generic Epclusa

Paul and Erich Lauffs: Tyrosinemia
harvoni cost in india At first glance, Paul and Erich Lauffs, ages 10 and 6, of San Diego, CA, seem like typical boys. They run, play, climb trees, fight with each other, and do all the other things boys do. But they are far from typical. Both children were born with hereditary tyrosinemia, a genetic inborn error of metabolism associated with severe, and frequently fatal, liver disease in infancy. Their mother, Colleen, calls them "miracle children," because their survival is indeed a miracle.

The family's long ordeal began in July, 1986, when Paul was born. He was slightly jaundiced, but this did not concern his mother so much as his general mood.

"Paul was always cranky and irritable," she recalled. "I was a first-time mother and didn't know a lot about babies. But I knew that something must be terribly wrong with this child for him to be so miserable."

In addition to Paul's general crankiness were many disturbing physical symptoms. His stools were occasionally bloody, and tests showed his blood wasn't clotting properly. To make matters worse, he had frequent bouts of projectile vomiting. Paul's parents, Hubert and Colleen, took the baby to numerous specialists in California and around the country. Numerous tests were done, but nobody was able to determine what the problem was.

When Paul was three months old, the family went to Johns Hopkins University Medical Center. "Finally, after two more months of tests and examinations, a consulting pediatrician suggested that it might be tyrosinemia, a rare liver disease that affects large numbers of French Canadians and northern Europeans. It is only diagnosed in Quebec and Holland," Colleen said. "Dr. Dave Valley ordered the tests, and they came back positive. Even though this was not good news, at least we now knew what was wrong with Paul."

The family returned home, and Paul was placed on a special non-protein formula, which he tolerated well. For two years, she fed Paul every two hours, around the clock, and he thrived. "For awhile he looked like a little epitome of health," she said, "but then things started to go downhill again."

Paul's name was placed on the transplant list, and in March, 1988, he received a new liver. Unfortunately, it was not a match for his own blood type. "The next year was like a roller coaster," Colleen said. "Paul continued to get sick. He suffered from raging fevers. Finally doctors operated on him to place stents, or drains, in his bile ducts. Since then, he has done extremely well."

Despite all the anguish they suffered over Paul's illness, the Lauffs wanted to have more children. Counselors told them there was a one in four risk of passing the disease to other offspring, and that amniocentesis, a procedure in which a mother's amniotic fluid is drawn with a needle and tested for potential health problems, could tell them if their unborn child was affected. They decided to go ahead, and Colleen had amniocentesis. When the results of tests were negative for tyrosinemia, the ecstatic family celebrated.

Erich was born in December, 1989, and he seemed to be a perfectly healthy child. "But when he was about three weeks old, I began to feel that something wasn't right," Colleen said. "Something about his eyes reminded me of Paul's eyes. There was a similarity to the skin at the inner corner of the eyes. Maybe it was intuition. Even though the amniocentesis had been negative, I decided to have another test done, for my own peace of mind."

When the test came back positive, the Lauffs' pain was almost unbearable. "I cried, I screamed, I yelled," Colleen recalled. "I just couldn't believe it. We repeated the test twice more--and it was positive both times. It was unbelievable."

Apparently, the amniocentesis had not detected certain substances in the amniotic fluid that would indicate tyrosenimia. "We were told the levels had been too low to detect," said Colleen.

As Erich grew older, he had many of the same health problems as his brother--as well as a few new ones. He went on the same special formula with the same feeding regimen, and did fairly well. When the manufacturer discontinued the formula, Colleen called hospitals and health care facililties all over the world, to ask if she could purchase existing stocks of the formula. Before too long, she had a large supply stockpiled in her house.

Unfortunately, Erich's health deteriorated, just as his brother's did. By the time he was two years old, he was so sick that his name was placed on the transplant list. "His neurological system was seriously affected, a common symptom of this disease, and he had terrible pains in his legs and all over his body," Colleen said.

Erich's condition became so serious that doctors admitted him to UCLA Medical Center to wait for a liver. On April 11, 1992, Colleen's birthday, he received his first liver transplant. Unfortunately, problems arose with the hepatic artery, making the liver unusable. A few days later, he received a second liver, and suffered further complications. Fortunately, his third transplant was a success. "After 113 days in intensive care and three liver transplants, Erich finally got to go home," said Colleen. "We are so grateful to Dr. Busuttil, his surgeon. He says Erich is a real miracle. Both my boys are miracles. "

Today, Erich and Paul are healthy and active. They play baseball and soccer, swim, and do other things boys do. "Both children know they have a rare disease, and that they are special. Their belief in God and the will to live is why they have survived and beat the odds," said Colleen. "Without the benefit of the gift of life from transplant donors our children would not be with us today."

Nicholas Ceren: A Near-Fatal Liver Injury | Generic Harvoni | Hepcinat LP

Nicholas Ceren: A Near-Fatal Liver Injury Generic Harvoni | Hepcinat LP
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 Earlier this year, a playground accident turned into a nightmare for 10 year old Nicholas Ceren of St. Charles, IL. Fortunately for Nicholas, his life was saved by a quick-witted doctor who recognized the symptoms of severe liver trauma and gave the child the medical treatment he so desperately needed.

It all happened in late May, when Nicholas and his friends were playing during recess at school. Nicholas and a classmate collided while running and Nicholas careened down a small hill, crashing into a piece of playground equipment.  Generic Harvoni | Hepcinat LP His fall was broken by a protruding metal bar, which struck his abdomen with tremendous force. Nicholas writhed on the ground, doubled over by pain so intense he could not stand up. A teacher brought him to the nurse's office in a wheelchair. The nurse placed an ice pack on his abdomen and called his mother, Jackie, a travel agent. hep c treatment cost in india

"I work about an hour away from the school," said Jackie, "and it seemed like the longest hour of my life. When I got to the school, I found Nicholas lying in a fetal position on a cot, crying. I helped him up and he started going out to the car. As I was signing him out of the office, I happened to glance out the window. I was horrified to see my son lying on the sidewalk next to the car. He was too weak, and in too much pain, to even stand up. I ran outside, helped him into the car, and took him straight to our family doctor. He's known us for years--in fact, he took care of me when I was a child."

The doctor immediately noticed something the school nurse had missed: Nicholas' pants were soaked with urine, a not uncommon occurrence following abdominal trauma. Suspecting severe internal injuries, the doctor admitted Nicholas to the local hospital for tests.

Late that evening, Jackie received terrible news. Nicholas' liver was severely lacerated, with a 3 by 5 inch blood clot. He was transferred via helicopter to Loyola Medical Center near Chicago, a larger facility better equipped to deal with his injuries. Jackie and her husband jumped into their car and sped to Loyola, about 45 minutes away. Sofosbuvir Velpatasvir | Generic Epclusa

Nicholas spent six days in the hospital, four of them in intensive care, while doctors waited for the clot to dissolve. "The regimen was for no food or water for 48 hours," Jackie said. "Then they fed Nicholas and watched to see if he vomited." Fortunately, Nicholas was able to hold down the food. After six days, he was discharged, with four more weeks of rest at home. His parents are thankful that he seems to have made a complete recovery.

"After this happened, I wanted to find out more about 'blunt liver trauma,' which is what the doctors called Nicholas' injury," Jackie said. "I did research at our library to find articles on the subject. But I was surprised at how little there was. I decided to call the American Liver Foundation to tell them what happened, so they can warn parents. We were very fortunate to have a physician who recognized the possibility of severe liver injury. If he hadn't, we might have lost our son."

Liver Transplant: Life on the Liver Waiting List Sofosbuvir Velpatasvir | Generic Epclusa

Liver Transplant: Life on the Liver Waiting List Hospital administrator Katherine Krivy suffers from Primary Biliary Cirrhosis (PBC), a rare, chronic, and progressive disease that causes irreversible destruction of the bile ducts. Sofosbuvir Velpatasvir | Generic EpclusaShe felt devastated when she was put on the waiting list for a liver transplant. “I took the event as a personal failure. ‘Listing’ was something I never really imagined I’d be doing. I thought I’d heal myself with herbs or meditation or some miraculous event.” But like many individuals with a chronic liver disease, Ms. Krivy adjusted to a life in limbo, waiting a full three years before her transplant. She was not alone.
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There are currently over 17,000 people waiting for liver transplants. In 1999, there were approximately 4,500 cadaveric livers available for transplants. Over 800 people died last year while waiting for a transplant and the rapidly increasing number of diagnosed hepatitis C cases will increase these deaths. Although living donor transplants may hold the answer for some who are in need, others will inevitably die waiting for an organ. When the general media covers the topic of transplants, the realities of the waiting list are rarely explored, nor are the bankrupting expenses related to surgery and the difficulties associated with the immune suppressant drug therapies that are part of post surgical life. This is the story from the point of view of liver patients and their families.

Stand-up comedian Richard Ramirez sees humor in almost every situation. But no one could expect laughter from the comedian’s diagnosis with Primary Sclerosing Cholangitis (PSC). PSC is a disease in which the bile ducts inside and outside the liver become narrowed due to inflammation and scarring. In 1995, he was told he would need a transplant in two to six years. On April 9, 1997, he went into the hospital and was told he could not leave until he got a transplant. He waited for 40 days.

He survived the wait with an attitude that has continued to shield him through a series of post-surgical complications, including brain seizures, and he advises anyone currently waiting for a liver to “continue to have faith and think positive. While I was in the hospital, my blood type was my affirmation -- B-Positive!”

Katherine Krivy’s experience of waiting for, and eventually getting, a transplant, necessitated major changes in her life and her attitude. “I stopped worrying. I read Holocaust survivor Victor Frankel’s book, Man’s Search for Meaning. He said that a man can survive anything if it has meaning, and the only thing you can control in life is your attitude.”
Ms. Krivy realized that she would have to imbue her experience with a truly compelling purpose in order to survive the ordeal of the waiting period. She got involved with the PBCers organization and ALF, actively participating in fundraising events. She has also become an articulate spokesperson, appearing on television, and talking to everyone she can about PBC, organ transplants, and liver disease in general. By “giving back,” Ms. Krivy has altered her experience and her life.

Life on the waiting list is challenging, and family members share the long days and longer nights with liver patients. Laurie Higgins waited with her 32-year-old husband. “He was a basket case. There were so many times he’d just say he wanted to die; that he couldn’t take it anymore.”

The availability of livers is unpredictable, and one night Laurie’s husband was prepped for surgery only to be told that there was something wrong with the organ. The roller coaster of emotions is almost unbearable.

Part of the omnipresent horror of the cadaveric liver waiting list is the unique knowledge that someone will have to die in order for the organ recipient to live. As Ms. Krivy grew sicker, she faced this reality. “One of my first thoughts was that someone is going to have to die to save my life. I wasn’t comfortable with that, and had to deal with another human being at the other end of this.”

Richard Ramirez will never take life or his health for granted again. He is thankful and acknowledges that the liver he received came from a 55-year-old woman from Long Island. “Every night that I take the stage, I talk about my transplant. I use my routine to spread organ donation awareness.” No one who has received a transplant forgets the organ donor and their role in creating a second chance at life.

There are many misconceptions about life on the list, including the idea that one has an actual number that will be reached within a set period of time. She said she had “plenty of time to think about it.” As she gradually started telling people she was on the list, she had a sense that they were watching and waiting. “The milestones are you getting sicker and your status moves up but it’s not like a number in a store line,” says Ms. Krivy. “Waiting wears on you more than being sick. It’s a constant holding pattern. You wonder what is going to happen and when.”

Even after the transplant, the waiting continues. Laurie Higgins said that doctors gave her husband a two-year window for rejection after a seven-year wait for the organ. “It’s still in the back of our minds.” The other issue that rests in the back of Laurie Higgins’ mind is the enormous expense related to the transplant. She strongly recommends that the families of patients on the waiting list begin fundraising prior to the surgery. Insurance does not cover it all, and the impact can last for years and years, adding a layer of financial insecurity to the joy of a new life.

The years Ms. Krivy spent on the list shaped her post-surgery life. “Living day-to-day and trying to be thankful for what I have, helped me realize that I’m the happiest I’ve ever been in my life. Now I am giving back. I have come to truly believe that, based on my own personal experience, there is a silver lining or another side to every bad or unpleasant thing. Instead of looking at the bad, I wonder what I am supposed to learn. My blessing was finding the meaning in my life.”

Eric O'Connor: Making Every Day Count Hepatitis C Patient Generic Harvoni | Hepcinat LP

Eric O'Connor: Making Every Day Count Generic Harvoni | Hepcinat LP
harvoni cost in india Editor's update 2002: ALF is proud to report that Eric has graduated Drake University and was recently married. Congratulations!

Seventeen year old Eric O'Connor, of Winfield, IL, is every parent's dream come true. Polite, well-spoken, and mature, Eric is an excellent student and athlete. Generic Harvoni | Hepcinat LP He plays baseball and soccer, and is also a member of his high school's student council. A talented musician, Eric plays clarinet in his school's marching band and bass guitar in a rock band. He is also tall, blond, and exceptionally handsome. In what little spare time Eric has, he caddies at the local golf course. "Wherever I go, people are always telling me what a terrific kid Eric is," said his mother, Trisha."I have to agree with them--he is pretty terrific."

While Eric seems to lead a charmed life, he lives with a burden that most adults would find overwhelming. This past February, after attempting to donate blood in his school's blood drive, Eric received a letter saying he had tested positive for hepatitis C. "I didn't pay much attention to it, but my mother sure did," he said. Several tests later, Eric's diagnosis was confirmed. "What a shock that was," recalled Tricia. "I was devastated. We weren't sure exactly what it meant, since we didn't know much about hepatitis. But we set about educating ourselves." Like many people with hepatitis C, Eric and his parents are not sure how he became infected.

In April, Eric underwent a liver biopsy, which indicated his liver was mildly inflamed. Despite this news, Eric continued to feel fine. However, his medical visits caused him to miss several days of school--and more than a few baseball games. His frequent absences alerted his friends that something was wrong. "I didn't try to hide anything from my friends," said Eric. "Everyone was very sympathetic. They were scared for me, but not for themselves. My girlfriend was scared, too, but she's fine now." Trisha said, "We were glad Eric was comfortable talking about his situation. I've always believed that when you talk about something dreadful, it becomes less dreadful."

After the biopsy, Eric consulted another physician for a second opinion. This doctor recommended interferon therapy, which Eric began in mid-June so it wouldn't interfere with his schoolwork. "At first, it was a little hard learning how to give myself injections, but I've become pretty good at it," he said.

Unfortunately, Eric is experiencing some side effects from the drug, particularly fatigue and loss of appetite. "It's strange, because I didn't feel sick from my hepatitis, but I feel very sick from this drug. My mom is upset because I'm not eating, and I don't have my usual energy. I used to be able to caddy 36 holes, play some baseball, then go out with my friends at night. Now, I can't do more than 18 holes, and I'm falling asleep by 10 PM. But I don't mind feeling this way if the drug helps."

In July, Eric was named to the Soul of Healing Trust Advisor. Among the goals of the council are finding cures for the many diseases that affect the lives of thousands of young people and their families--people like the O'Connors. These are goals that Eric wholeheartedly supports.

"Having hepatitis C has changed my life, but not my perspective on life,"Eric said. "I plan to go to college, to continue with my life. Whether or not I have hepatitis C, I try to make every day count."

Hep C Patient Now is an Advocate Sofosbuvir Velpatasvir | Generic Epclusa

Carolyn Powers: A Hepatitis C Patient Becomes an Advocate Sofosbuvir Velpatasvir | Generic Epclusa
hep c treatment Carolyn Powers is a community activist dedicated to environmental issues. She is the single mother of two grown daughters, and has hepatitis C. Recently, Ms. Powers became an advocate for changing the regulations concerning medical coverage of living donor transplants in her home state of California. Sofosbuvir Velpatasvir | Generic EpclusaDue in great part to her efforts, Medi-Cal, California’s Medicaid program, is altering its policies regarding living donor transplants. As of December 2000, Medi-Cal will fund adult-to-adult living donor transplants.

Until the day of my esophageal bleed (bleeding of enlarged and ruptured veins in the esophagus) I was in fantastically good health. My only complaint was getting tired easily. The day before the bleed, I had been out on a four-and-a-half hour horseback ride with a National Geographic writer.

The next morning, I was dizzy. I felt like I was dying, so my roommate called 911. The doctors gave me a nasogastric tube (a tube that goes through the nose to the stomach) and I vomited two liters of blood. They were screaming to transfuse more blood. One doctor kept telling me not to worry, that I wasn’t going to die. But I didn’t understand. I felt like the calm at the center of a hurricane. I found out later that about 30 - 50% of people die during that first esophageal bleed.

In the next day or two, they found that I had hepatitis C and told me I would need a liver transplant or I’d continue to have bleeds and die. They said I had a cirrhotic liver. Like many people, I associated cirrhosis with drinking. I wasn’t in any of the risk groups so I’d never thought twice about getting tested for hepatitis C.

It was a very shocking process: the bleeding episode, the diagnosis. I was 54 years old and thought I’d be healthy into my 80’s or 90’s.

I had just finished working for State Senator Steve Peace and was working part time for former U.S. Congressman Brian Bilbray (R-CA). This was after my divorce, and I had no health insurance. There are no handbooks on what you do when you have a life-threatening disease and no health insurance.

A local county supervisor helped accelerate things and spelled out how I could get Medi-Cal. Medi-Cal rules don’t allow you to make more than $700 a month. If you make more, they pay less for your medical expenses; and the divorce left me owing money, not having it.

In the beginning, my daughters teamed up and took over. They made decisions about what information I was ready to hear -- what was ‘mommy safe.’ Teresa found ALF and the local San Diego Chapter. They answered her questions, sent newsletters, and told her about support groups.

That’s when I got hooked up with my UCSD Medical Center Liver Transplant team. The man who will likely be my surgeon talked about living donor transplants. My older daughter, Nadine, has my blood type and was willing to look into donating part of her liver. We explored the risk factors in adult-to-adult transplants. Some of the earlier surgeries had donor fatalities, but that was more than ten years ago. Only 300 or so adult-to-adult living donor transplants are done in the U.S. each year.

My surgery was scheduled. But then I got a notice that Medi-Cal did not approve my surgery. They would fund an adult-to-child transplant but not adult-to-adult because they were stuck on it being too risky to the donors, and perhaps unethical. It bothered me that Medi-Cal had not even taken a look at living donor transplants since 1996, and there have been so many breakthroughs since then. There are now 17,000 on the liver transplant waiting list; last year there were 14,000.

I was approved for a cadaver transplant. 20 - 30% of people die while waiting three-to-five years for a cadaver transplant in San Diego.

Unless the living donor option is available it will only get worse and worse. I want to make Medi-Cal accountable for their actions. Living donor transplants can lessen the competition for cadaver organs.

Since then I’ve been working with everyone, including U.S. Senator Dianne Feinstein’s chief of staff. When Senator Feinstein was the featured speaker at a luncheon, I was introduced to her and she hugged me and told me that her staff would be on this until the criteria are changed in California. She had received a tendon transplant; she understood.

Editor’s note: There are numerous other states that do not cover adult-to-adult liver transplants. Ms. Powers has committed herself to working with the ALF and speaking out on behalf of those patients who are denied this coverage.